I kind’ve want to cry. I just don’t know how this is supposed to work. This day started at 6 am and ended at 2 am. Is high-school literally trying to murder people? Not even just people with health stuff - I mean that’s nutty for anyone, right? Our little warrior made it through the first week of school but barely. Had one heat / exertion related episode at school today (temperature regulation is hard with POTS) and then another in 100+ degree heat at 9 pm tonight cheering in the valley. Even football players were going down with cramps and heat issues. What a mess. I feel worried and defeated. By the time we got home she was vomiting and all the symptoms were up. But she’s determined to try to keep going. First dance tomorrow night. Senior retreat next week. Honestly I just want to steal her and whisk her away to a far off land until this phase fades into her memory. But that not what she wants. Not what she is fighting for. She’s so damn tough but wtf. This is already sooooo much. Anyway I don’t know how y’all “normal” folks do it. I don’t get why we put our kids through so much. Isn’t there a simpler less extractive way? I sure wish there was. Or wish she would claim it.  😞🙏🥵 #strugglingforgratitude #sadmama #somethingsgottagivealready #ugh 365 Days of Gratitude...days 349 (349/365/y12) #365DaysofGratitude #GratitudeGirl #DailyGratitude #EverydayMagic #gratefulone #mysticmamas #puremagic #together #chronicwellness #candidsadness #chroniclyme #pots

Posted by lindsaypera at 2022-08-20 09:40:25 UTC